The turning point
After nearly a year of inspiring dedication and determination Ethan’s chest is almost completely flat - and he has been able to gradually cut down the hours of wearing it. He now feels confident when going out with his friends, and doesn’t shy away from activities like swimming; he even found that doing his GCSE’s was not disturbed by the brace as his chest wasn’t worrying him anymore.
The bracing treatment had a significant impact not only on Ethan’s physical health, but also his mental health too, as he now realises the detrimental impact it was having on his life before – “The thing I am looking forward to most is just feeling normal. I can now go out in public with confidence, wearing normal shirts and jumpers.”
One of the biggest turning points for Ethan was being able to go back to the climbing wall again after nearly a year off, as before he was worried about injuring his chest and the brace getting in the way. However, now he has more confidence than ever, and has found he can do more advanced climbing manoeuvres as his ribs don’t feel as though they are ‘moving’ as much and are more stable.
Returning back to every day activities and the hobbies he loves was the main aim for Ethan and his family, and he has achieved it through sheer courage and determination when it comes to the treatment process. His mum Claire is particularly proud: “Looking at a picture from a year ago, he’s smiling but it isn’t a happy, genuine smile. So compared to now, I can really see the difference the treatment has had on him.”
During his treatment Ethan was offered the opportunity to speak at the National BAPO Conference, where he bravely spoke about his treatment experience in front of a room full of clinicians, who were fascinated and moved by his story and came away feeling enlightened about the condition.
Now, as he nears the end of his treatment Ethan is keen to spread more awareness about Pectus Carinatum and campaign for the bracing treatment to be more readily available, whilst helping others who may be going through the same thing. Claire has also been taking action to help families whose children have the condition, through a private Facebook group of parents and patients from all over the world who swap stories and support one another.
Ethan’s advice to anyone about to begin treatment is simple: “At first it will be hard and difficult, but just persevere and it will get easier. Get on with your everyday life and it will be worth it. Just think – this treatment is only a small fraction of the rest of your life.”